Monday, February 19, 2018

Thursday, February 15, 2018

Support Group Meeting Saturday, February 17: Rock Steady Boxing!

Hello friends, we will have a boffo meeting this Saturday with a presentation on a new Rock Steady Boxing program that is forming in Anchorage This is one of the most  popular PD exercise programs, so it's exciting to have it happening here in Anchorage. See you at 3:30 at the Pioneer Home, This Saturday!

Thursday, January 18, 2018

Support Group Meeting Alert (This is NOT a Drill!)

Hey Everybody, It's a meeting alert! We will have our regularly scheduled meeting this Saturday, January 20th, 3:30 at the usual place, the Pioneer home 5th floor West lounge. We will have a parkinson's pop quiz to start the new year right, so bring your brains, or your gut or whatever you use to do your best thinking. (Magic 8-balls, ok too!)

see you soon!

Peter

Tuesday, January 9, 2018

A few notes on falling


Back when I was first diagnosed with Parkinson's Disease, I had a fear of falling. There were two things I especially did not relish about the idea that it would become a part of my modern lifestyle. #1 was pain, and the possibility of a fall leading to broken bones, leading to becoming bedridden, leading to bedsores, leading to infection, leading to death. #2 The fact that, back then (17 years ago!) there was nothing I could find known to improve falling. As a person with Parkinson's, you were just doomed to fall. Get used to it.

This was very frustrating, and horribly demoralizing. And we now know, not true. Yes, you will fall more if you have PD, but there are now activities that can improve your balance, stopping falls before they happen. I did a two-part infocomic on this topic, you can find the first part here, and the second here. Walk tall, don't fall. That's all.

Friday, December 29, 2017

Coming THURSDAY, January 4th, a Special Edition of the Anchorage Parkinson's Disease Support group: Connie Carpenter Phinney on Care Partnering

We will have a special edition of the Anchorage Parkinson's Disease Support group on THURSDAY, January 4th. Our speaker will be Connie Carpenter Phinney of the Davis Phinney Parkinson's Foundation. Connie has 17 years of experience as a care partner with her husband Davis Phinney. Both Phinneys were champion cyclists ​in the 1980's with Connie winning a Gold Medal at the Los Angeles Olympic Games. According to the entry on her in Wikipedia, she "is an American retired racing cyclist and speed skater who won four medals in World Cycling Championship competitions (both road and track cycling) in the late 1970s and early 1980s. She also won the gold medal in the cycling road race at the 1984 Summer Olympics in Los Angeles,[1] as well as twelve U.S. national championships. She remains the youngest American woman to compete at the Winter Olympics.[2]" Connie will share her experiences and tips for care partners in an hour-long ​presentation that will include time for questions. This special meeting will be at 4:30 on Thursday, January fourth, in our usual meeting place, the Anchorage Pioneer Home, 5th floor West lounge. I hope to see you there!

Peter

Wednesday, December 20, 2017

Closing the Year on a High Note. International Cooperation to Help People with PD

Okay, I admit the "International Cooperation" heralded in the clickbait hed above was just me and one French guy, but dagnabbit, we must start somewhere! It began when with a note from Monsieur Jean-Louis Dufloux seeking permission to use an old but redoubtable cartoon I drew (Yes, it's this one.) to illustrate a chapter of the manuscript he is finishing on Parkinson's Disease.

A bit of banter was followed by my sending a sample illustration based on his summary of a scene from his manuscript. The drawing elicited this request from my new BFF (Best French Friend) M. DuFloux:

"Hello Peter,

If possible for you, I would like to have four more drawings :

the use the repelling aspect of PD as a political weapon. My chapter illustrates the attack on Hill
ary Clinton by Donald Trump’s team during the last Presidential vote
the impact on well-being of l-Dopa at the beginning of the disease, the “honeymoon effect”
something about all the research made by teams in the world, the access to this content through internet, giving hope or disappointment
the impact on sleeping and the terrible wake up.

Tell me if you need more information.
Is it doable?
You can write dialogs, I will translate.
Thanks"
 
As it turned out, it was possible. The drawings appear below. 
 



Sunday, December 17, 2017

Monday Meeting with Speech Pathologist Anne Ver Hoef UPDATE

Hello friends, Anne Ver Hoef who is coordinating the new speech  practice meetings for people​with PD asked me to pass along that the next meeting, Monday Dec. 18 at 3:30 will be held in classroom 1, NOT the Ivy room.  Classroom one is downstairs in the bldg closest to Airport heights Dr. in the AK Regional complex.​ This should be a helpful activity that aims at preserving and conserving our ability to communicate, which is key to quality of life. Anne is the bee's knees, so this meeting is highly recommended.